Thursday, December 29, 2011

Holiday Hello and Thank You

I am long overdue writing a thank you to all of you for your overwhelming kindness and concern for me and my family.  I read each and every one of your comments and e-mails and appreciate the thoughts and prayers sent our way.  It really meant a lot to me.

I would like to share a quick update with all of you.  After a very rough couple of weeks around the Thanksgiving holiday, Bruce's condition has stabilized.  Some of the troubling symptoms he was experiencing are under control and he is much more comfortable now.  He can no longer walk or stand and I have become quite adept using a hoyer lift to get him in and out of his bed and/or power chair.  His voice is pretty much gone but he is still able to use his hands and that has been a blessing as technology has become his way to communicate with family and friends via texting, e-mail and facebook.  It hasn't been an easy transition into what we now call our new "normal" but we do feel very blessed that we are welcoming in a new year together.

Happy New Year to all of you!  Thank you again for all of your support!

Jane

95 comments:

  1. Continued prayers for you, your husband and entire family...
    Big hug,
    Laura

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  2. Thank you for the update and good news.
    Yes, the prayers will still continue.

    Peace be with you.

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  3. Jane
    you've been on all of our minds.
    When someone is missing it is quite noticeable.
    God bless you as you travel the road unkown ... twogether!

    HAPPY NEW YEAR

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  4. I'm glad you've been able to find peace and a "new normal".

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  5. It's good to hear from you. I'm sorry for the loss Bruce has experienced, but your attitude is inspiring. We'll keep praying.

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  6. I was just thinking about you this morning so glad you popped in to give an update. Wow what a challenge for both of you, prayers being sent your way. Hugs, Diane

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  7. Oh Jane,
    My thoughts and prayers are with you and Bruce.
    God's blessings....
    dee dee

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  8. You and your family remain in my prayers...I pray your "new normal" is filled with as much joy as possible.

    Happy New Year!

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  9. Jane, I will continue to keep you and your family in my prayers. Hugs.

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  10. Thank you for the update, Jane. You all are in my thoughts and prayers.

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  11. i will keep praying for your husband, you and your family. i am so happy to hear his condition has been stabilized. god bless you all.

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  12. I will continue to pray Jane and I am so glad you will be ringing in the New Year together :)

    Lou Cinda

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  13. Oh my prayers go out to you and the family. Bless his heart, and thank goodness for technology. I know from personal experience the transition we must go through to care for them, and you have a lot of strength.

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  14. Jane you and your husband and family will be in our continued thoughts and prayers. Thank GOD for technology today and the means of communicating. Have a Happy New year! Wishing you all the very best in 2012, and your new "normal".
    XO

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  15. So glad to hear this good news, looking forward to the time you can start posting again as I am a new follower and love what I have seen on your previous posts. Bless you for being a gracious caregiver and seeing the good side of a bad situation, may you continue to have the strength, and positive attitude to continue this journey with your husband...God Bless you and the family...Kim, Puyallup WA

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  16. Thank you for the update. Glad things have stabilized. God will take care of you and your family. Blessings Lynda

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  17. i will keep you and your hubby in my prayers and hope for a happy new year with many blessings coming your way!!

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  18. Many prayers for you and your husband. I'm glad that things somewhat have strengthen out for you and you are able to adjust...May the Father above always be a comfort to you and your husband...Much love n hugs Janice @ spoonwither.blogspot.com

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  19. Very thankful for the new normal Keep the faith

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  20. keep yourself well and strong ...
    thanks for the update ...
    all my best to you and your family in 2012.

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  21. thanks for the update Jane - yes, a new normal - sending you and your family wishes for mental and physical strength for the new year ahead

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  22. Jane, you've been in my thoughts so much these past few weeks. I'm happy to hear your husband has stabilized, and that you're able to spend this time together. I can't imagine what all you're dealing with. Wishing you and your family all the best.

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  23. Sending warm thoughts to you and your husband.

    Namaste
    [the light in me greets and honors the light in you]

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  24. Thank you for the update. You and your family have often been in my thoughts. Sending you love and prayers.. ((hugs))

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  25. Jane, I'm so glad to hear Bruce's condition has stabilized. Thanks for the update! It's so wonderful the technology exists for him to be able to continue to communicate with loved ones as that must be a comfort to all of you. Prayers and hugs to you and your family! Happy New Year!!

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  26. God Bless you and your family Jane. You are a strong person and I know that there are many difficult days for you. I'm remembering you in prayer.

    hugs
    Sissie

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  27. Thanks for sharing this journey with us. I don't know what it's like, but I'm touched and hope you have Strength!

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  28. Oh dear Jane......I can only imagine what you must be experiencing and feeling at the moment. You....my friend.....are a real hero!

    xo

    Jo

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  29. thanks for the update, Jane. Know that you have lots of folks out here in cyberspace wishing you and your dear husband well. How wonderful that computer technology is helping him communicate and stay connected with you. Best wishes. Stay strong.

    maggie

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  30. I've been thinking about you and was so happy to see your updated post today. So glad to hear that your husband is more comfortable and that you have tools to help and the technology so that he can communicate. Love and best wishes.

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  31. Hi dear Jane,
    I'm happy that you will be celebrating the New Year together!!!
    Continued prayers for both of YOU!!! Sending a hug or 2!
    Love and prayers,
    deb

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  32. God bless you and your husband. My friend is going through the same thing right now. Your in my thoughts

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  33. I will continue to keep all of you in my prayers..

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  34. Jane,
    I'm very happy to hear that Bruce is now stable and ringing in the NEW YEAR with you. I will keep praying for all of y'all. Happy New Year my friend!!!

    Blessings,
    Linda

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  35. I'm glad to hear he's stabilized, Jane! I was thinking of you.

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  36. Soooooo glad to hear things are going so well. My heart goes out to you and your family. ALS is not kind. Keeping you in thought and prayers in Iowa.

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  37. You are so kind to take time out of your busy day to let us know how ya'll are doing. Think of you often and keeping ya'll in prayer.
    Lisa

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  38. Jane it is so good to hear that things have stabilized. This is such a hard time for all of you. Keeping you and your family in my prayers and especially Bruce. Big hugs, Linda

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  39. I hope and pray that you can spend as much quality time with Bruce and your family. I know the road that you are traveling so well, and deeply understand your heartache, pain and emotions that are running rampid.
    God be with you!

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  40. It is so good to hear from you. We have all been so worried about your husband, you, and your family. I am so inspired by your positive attitude and acceptance, though I'm sure it is SO difficult and draining. Please know that complete strangers do care, and pray that there will be many blessings in this journey you are on. God bless.

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  41. Oh I am so glad he is doing some better....have a wonderful New Year!!

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  42. So glad to hear from you Jane. Wishing you and your family all the best for the New Year.

    Jocelyn @
    http://justalittlesouthernhospitality.blogspot.com

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  43. Hello Jane,
    It's good to hear from you. Thanks for the update! I wish I lived closer to give you a hand here and there :)
    Have a wonderful New Year!
    Your in my thoughts,
    xxx Liz

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  44. I've thought about you guys so much, Jane! So glad you checked in with us. Your strength amazes me!
    Brenda

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  45. Jane, thanks for the update. I think about you all the time! I was praying for your hubby to have a huge rally, but I guess I will have to be happy with stabilized and comfortable, that is what is most important, we all want him to be comfortable! Give him a hug from all of us, he must be scared and sad...Ya know, it's just not fair, what a crappy cruel disease! We are all here for you 24/7 and thrilled you will be welcoming in a new year together!

    Carol

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  46. I am glad to hear that Bruce's condition has stabilized, Jane...I am keeping you all in my prayers, love to you my friend XOXO

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  47. I just want to add my good wishes to you and your husband and family. So great that he can still communicate with a computer, it would alleviate a lot of his frustration I am sure. You will all stay in my thoughts. Thanks for updating us all.

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  48. Hi Jane-- so glad you were able to pop in and give us an update. Wonderful to hear that Your Hubby is stabilized and made it through the holidays. You're on my mind. I'm praying still for You and Him ...as well, as your whole family.

    I hope New Years is a blessing for you.

    Pat

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  49. Thanks for the update - obviously we were all concerned and needed to know that you and your family are staying positive and receiving our prayers! be strong and happy new year

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  50. It's so good to hear from you. I've been keeping you and Bruce in my prayers and will continue to do so. Blessings to you and your family in the new year.
    Big hug!

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  51. Thank you so much for the update Jane. I've been thinking about you and your family much over the holidays. I'm sorry you are having to go through this but very thankful that you were able to spend the holidays together and like you said... ring in the new year. How wonderful that you have found a way to communicate.

    Always thinking about you and always praying for you, my friend.

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  52. I am so glad things are leveling off enough for you to catch your breath. I think of you often and continue to pray for your family. Blessings in the New Year.

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  53. Thanks for the update. May God bless your family in the New Year.

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  54. Glad you had the time for an update, as you see, you have been in all our thoughts and prayers. Continued prayers for strength for both of you.

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  55. Jane, I'm so glad to hear that he is stabilized. I have thought about you and your family often and will continue to keep all of you in my thoughts and prayers. May God Bless you and your family in the New Year...hugs, Gail

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  56. Glad to hear this update Jane! You come across very resilient and strong which must help in this situation sad as it is.A well known broadcaster here on TV in Ireland was diagnosed with the same condition and has had to give up his job since as his speech was becoming noticeably slurred.Its a horrible illness.Take care.

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  57. Jane,

    I am so glad to hear that your husband has stabilized! I can't imagine what your journey is like, but I continue to pray for you all. May you make some wonderful memories in your new "norm". Wishing you a wonderful New Year.

    Hugs,

    Sheila

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  58. You are such a blessing to so many-
    I pray for your continued strength.
    I too have been in what I like to call New Normal
    and what I know to be true is that love and friends make all the difference.

    Laura

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  59. Although you have both been tried and tested beyond belief this year I am so happy to hear that you will be seeing in the New Year side by side.
    All my very best wishes to you both for 2012.
    Maggie

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  60. I discovered blogs about a yr ago and enjoy reading a few in the evening as a stress reliever. I've been a silent follower of your blog for about a year and have looked forward to your consistent postings and marveled at your creativity and insight. Even though I have not yet duplicated any of your great ideas you have brought me much inspiration and joy with your re-purposing and crafting genius. We've never communicated but regardless, I feel a bond with you and as such needed to thank you for your blogging and to offer my sympathy over your husband's illness , my happiness that you've found a new "normal" in dealing with the illness and my wishes for a wonderful start to a new year.

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  61. Keeping you and your family in my thoughts and prayers Jane...and a hug to you!

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  62. Dear Jane, wishing you continued strength as you journey along in your new normal. I am inspired by your positive nature and grace. May God bless you and Bruce abundantly in this new year. Wishing you peace, joy and love! Tammy

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  63. A new years blessing for you both.
    My prayers are with you Jane {and Bruce}.

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  64. Blessings to you! I've been checking your blog from time to time to see how you and your family are doing. I was so happy to read that things are more stable. May God keep you close as you journey on in 2012. I pray for peace for you.

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  65. Praying for strength and peace along this journey you are on...thanks for the update. So thankful that technology is helping you both! We miss you here in blogland and hope you can feel the love poured out to you!

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  66. So happy for an update! Our prayers are with you and your family! I'm expecting this new year to be a good one for all of us!
    tot

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  67. Great to hear the update, you'll continue to be in my Prayers..... xox

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  68. So appreciate the update Jane.

    Prayers going to our Lord in your behalf, and thanks for the two of you being together, as you said.

    Sweet blessings, and His power and strength and peace for you in 2012.

    barbara jean

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  69. Jane I have had and your husband in my thoughts. I am glad to hear you are adjusting. Continued prayers for your family!

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  70. Continued Prayers for you and your family, May God continue to bless you with strength and endurence.

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  71. I'm so glad your husband is stable! Prayers and hopes for peace, stregnth and happy moments.

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  72. Jane--I think of you often and continue to pray for you and your family.

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  73. Hi Jane,

    Glad things have stabalized for your hubby. I will continue prayers for your family.

    Hugs,
    Debbie

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  74. Thinking of you both, Jane, as you try to adjust and find joy in the moments you share with each other. I know it must be terribly hard on you right now, physically and mentally. Praying that God gives you the strength to balance everything and stay positive. Hugs

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  75. Jane, so good to hear from you. You and your husband have been on my mind lately. So happy to hear that he still has use of his hands. That is such a big relief I'm sure that he can still communicate via texting. The loss of communication is so very difficult. I can remember my brother's frustration so well.
    Happy New Year to you both. Hugs to you!

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  76. Nice!
    Congratulations!!

    *˛˚ღ •˚ ˚˚ ✰* ★
    ˚. ★ *˛ ˚♥* ✰
    ╔═════════ ೋღ❤ღೋ ══════════╗
    ║*˚♥˛˚ღ •˚ ˚˚ ✰* ★
    ║░ٌٌٌF░ٌٌٌE░ٌٌٌL░ٌٌٌI░ٌٌٌZ ░ٌٌٌ░ٌٌٌA░ٌٌٌÑ░ٌٌٌO░ٌٌٌ░ٌٌٌ N░ٌٌٌU░ٌٌٌE░ٌٌٌV░ٌٌٌO!░
    ╚═════════ ೋღ❤ღೋ ══════════╝
    *˛˚ღ •˚ ˚˚ ✰* ★
    ˚. ★ *˛ ˚♥* ✰

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  77. Hi Jane. I have been thinking of you and your husband. I just wanted you to know that I really enjoy your blog. You are so creative! Hang in there!

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  78. Jane, I'm so sorry to be so late in sending some good karma yours and Bruce's way. Hang in there and know that we are all thinking of you both!

    Jeanine

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  79. Jane, I have just so recently "met" you but I want you to know that you are a blessing and an inspiration. I pray that God continues to hold your whole family close as you process each day of this new year. I am so thankful that you are getting to welcome it together!!! Kelly

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  80. I don't know how I missed seeing this post! You and Bruce have been in my daily prayers and will continue to be as you continue on this journey. "new normal" is an appropriate description I guess. I'm glad that in this age of advanced technology, Bruce can still communicate with devices. I'm sure you are completely drained. I hope you are getting rest and taking time to tinker...your mind needs those breaks. Take care Jane.
    Hugs~
    Joyce

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  81. Thankful your husband's condition has stabilized into a new 'normal'. Also thankful for today's technology that is allowing him to communicate with you and your family and friends.
    Wishing you all God's blessings in the new year,
    Susanne.

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  82. Just checking in to let you know I am thinking of you and praying for your family every day, you are constantly in my thoughts

    Carol

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  83. I am a long time lurker on your blog- my thoughts and prayers are with you and your family.

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  84. Jane, you are in my thoughts......

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  85. Bless you both and you continue to be in my prayers. :)

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  86. I just found your site through the Flea Market Style magazine. You and your family are in my thoughts.

    Thank you for sharing all your amazing craftiness with your readers.

    Warmly yours,

    Amy in Sebastopol, CA

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  87. Happy New Year Jane! I am so glad to hear that Bruce has stabilized and that you are finding your new normal... I just knew that you would. You have an amazingly positive attitude matched with amazing strength. Your family will continue to be in my thoughts and prayers. May 2012 bring you an over-abundance of beautiful blessings.
    love,
    t.xoxooxoxooxo

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  88. My 18 year old son was just diagnosed with Becker's Muscular Dystrophy this past July. I understand how difficult it is to watch someone you love progressively get worse. Many prayers for you and your family.

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  89. Greetings from Southern California.

    I am Your Newest Follower.

    I invite you to visit My Blog.

    Have a Nice Day :-)

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  90. I have just caught up with your recent blog posts and was so saddened to read of your husband's illness. I have had experience of this debillitating condition through a friend and wish you both courage and love. M x

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  91. So happy to hear this good news, Jane. I have been thinking of both of you and praying for you. Wishing you and your family peace and love in the New Year.
    Cheryl

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  92. Happy to see you back. Your story inspires me... well, it's you and your husband who inspire me. God bless you!!!

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  93. It's so good to hear from you. I'm glad that things have settled down now and you are able to get back to blogging. A couple of my friends were able to borrow a voice synthesizer from the ALS Association, but I'm thinking you might already know about that technology and he prefers what he's using. Thought I'd mention it anyway. You're in my thoughts and prayers.

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Thanks for stopping by. I really enjoy reading all of your comments!