Thursday, January 26, 2012

My Hero

Almost two years ago, shortly after my husband Bruce was diagnosed with ALS, he was the honoree at a local ALS golf tournament.  Prior to the tournament, the ALS association asked us to write up a little bio about Bruce that could be displayed at the tournament.

Bruce and I sat down and wrote the bio and when we finished, he read it, and then commented that it sounded like he led a pretty ordinary life.

I couldn't disagree with him more.
Bruce led a life that was anything but ordinary and the true character of this man and just how extraordinary he was really shone after he was diagnosed with ALS.

From the day he was told he had a terminal disease Bruce faced the reality of his fate with courage, optimism and a will to fight.  He never asked "Why me" and he put his energy into volunteering for clinical trials and raising money for ALS research.  For two years running he was the top fundraiser for the local "Walk to Defeat ALS" fundraiser, raising over $60,000 for the cause.  In late December he collaborated with the local ALS chapter to set up a Promise Fund Campaign so that the work to raise funds for ALS research could continue in his name.  He was comforted knowing he could continue the fight to find a cure for this horrible disease after he was gone.  He made a difference and that made his life anything but ordinary.

Bruce lost his battle with ALS today.
He died peacefully with his family by his side.
He lived for 54 years but will leave a legacy that will last forever.
I want to thank all of you for your support and prayers over the past few months.
I know they were heard.

You can read more about Bruce on his ALS Promise Fund page:
Bruce's Battalion, Fighting ALS

Jane

353 comments:

  1. Oh God, Jane, I am so sorry! You and Bruce both were quite brave, especially when you first shared his diagnosis with us. I think you brought attention to ALS to those of us who may not have been familiar with it.

    Please know that I am thinking of you and your family and praying for you in this time of sorrow. Big hug, my friend!

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  2. I'm so sorry Jane. I think you and Bruce are both amazing! You will be in my prayers.

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  3. Jane, I am so sorry for your loss. What a courageous and caring man. Your words are moving and beautiful. God Bless you. I believe you truly are blessed.

    Colleen

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  4. You are in my thoughts and prayers. I am sorry that you lost the best friend you have ever had. I know he did an amazing thing by bringing such awareness to so many. May he be remembered first for being your husband and secondly by being a hero - who as you said- lived anything but an ordinary life.

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  5. Dear sweet Jane,
    I am so terribly sorry for your loss. Your Bruce was a wonderful man and thank you so much for sharing this with us.
    I'll be remembering you and your family in prayer.

    hugs
    Sissie

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  6. I am so sorry for your loss. My heart goes out to you.
    Hugs Jackie

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  7. Jane, I'm sad to hear of your loss. Both of you faced this challenge with courage and grace. You are held close in my thoughts and prayers during this time of loss. Thank you for sharing about Bruce and his fight. Keeping you and your family close in my heart. ~ Sarah

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  8. Oh, Jane, I am so, so sorry for your loss. Heaven gained a very special angel today. God bless you and your family.

    Vicki

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  9. So very sorry for your loss. He sounds like a great guy! May the peace and comfort of God surround you.

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  10. Dear Jane,

    I am so sorry. Praying for you and your family.

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  11. I'm so sorry for your loss. You will be in my thoughts and prayers.

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  12. I'm so sorry Jane. He looks like a wonderful guy! And it sounds like he did some very special and important things during his life. Sending hugs and wishing you peace.

    Polly

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  13. Oh Jane, I am so sorry. I am praying for comfort for you and your family.
    Hugs,
    Becky

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  14. God bless you and your family. I have thought about you often, because my friends husband is facing the same.
    Please know we are all here for you, in our prayers and in our thoughts.

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  15. Oh, my. I will keep your family in my thoughts and prayers. I sincerely wish for peace in your heart as you envelop yourself in happy memories of such a fine man.
    Sincerely, Dana

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  16. Oh, Jane I am so very sorry. I checked out Bruce's story on the ALS site and it looks like your husband was a special man. My heart goes out to you and your family.

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  17. My heart is breaking for you and your family to hear about the loss of your husband. You and your family are in my thoughts and prayers. Sarah

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  18. Jane, I am so sorry for your loss. May God be with you. Hugs, Nancy

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  19. So so sorry, Jane. He sounds like a remarkable man. Prayers for you and your family.

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  20. How blessed to have such a wonderful man in your life. A great example of human spirit. My thoughts are with you and your family.

    Maureen

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  21. Jane,

    What an incredible man. My heart just breaks for you, your son and your family. May God give you comfort and give you strength. You and your family are in my thoughts and prayers.

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  22. Dear Jane...I am so very sorry for your loss. Your husband sounds like he was an extraordinary man. Keeping you in my thoughts and prayers...

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  23. Dear Jane, My heart is overflowing with grief for you and your family. Bruce most definitely did not lead a pretty ordinary life. I pray that his legacy lives on.

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  24. Dear Jane...I am so very sorry for your loss. Your husband sounds like he was an extraordinary man. Keeping you in my thoughts and prayers...

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  25. I am very sorry for your loss, Jane

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  26. What a wonderful spirit he had....I am so sorry.

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  27. My sincere condolences on the loss of your sweet husband. Hoping and praying that you and your family will find the comfort you seek at this difficult time.

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  28. Thinking of you and your family and am so sorry for your enormous loss.
    Your husband was truly a special person.
    Much love, Laura

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  29. Oh Jane....I am so sorry Bruce lost this battle...there really are no other words that work here...please know you are in my thoughts and prayers, your whole family is! Sandy

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  30. I am so sorry to hear of your loss..You and your family are in my thoughts and prayers..God Bless You..

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  31. This breaks my heart. I am soooo sorry for your loss.
    Abby

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  32. I'm so sorry for your loss. What a beautiful family and legacy Bruce left. You're in my thoughts and prayers.

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  33. What a beautiful man Jane, you should be proud. So sorry for your loss.

    Our thoughts are with you, your family and friends at this difficult time.
    Tamara x

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  34. I am saddened by your loss of this brave man. May you find peace that You were blessed by having him in your life. Now God is blessed with having him by his side.

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  35. Dear Jane,
    You and Bruce have been in my daily prayers ever since you wrote about his diagnosis. I am so sad to hear of the loss of this brave and valiant man. You have both been so courageous. My prayers will continue for you.
    Joyce

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  36. Jane,my deepest sympathy to you and your family.

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  37. I am so sorry for your loss. May you find peace in the memories you have of such a wonderful man.

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  38. Oh Jane, I was just thinking about you and Bruce yesterday and wondering how you were doing. I'm writing with tears in my eyes, I'm sure this was the post you didn't want to ever write. How humble a man to think he was ordinary, the ordinary person, when faced with a terminal illness, worries about themselves, they don't raise money for people they don't know that will in the future face this horrible disease. I feel so bad for your son, he is way to young to lose his dad at such a fragile time in his life, but he is so lucky to have such a strong Mom, a lady that God hand picked because he knew she could handle this. I'm hoping you find peace with the realization that Bruce could not keep on, keeping on, and that you were appreciated for the care and comfort you gave Bruce in this battle. We are all here for you Jane, 24/7 No need for a brave face, we'll listen if you want us to listen, laugh if you want to laugh, and cry if you want to cry! May God hold you and your son in the palm of his hand

    Carol

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  39. My heart hurts for you. May God be with you and your family today and in the coming months as you try to make sense of this. I am so very sorry.
    xojana

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  40. Oh Jane. My thoughts are with you and your family.
    Amy

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  41. Jane-
    I am so sorry that Bruce has passed. You've written a lovely tribute to your husband and you said yourself-- he has left a legacy that will continue in his name to help fight this disease. So you see he didn't lose his battle with ALS. Like all of us--he was given his time here to do whatever it was that the LORD had for him to do. This is all part of that. I think Bruce won his battle--especially if he was able to keep up his spirit and his fight.
    You have a wonderful reason to call him your hero.
    I am praying for you and for your family. You may miss him here; but find peace in knowing that one day you will see him in Eternity.
    I pray for comfort and blessings these following days as you celebrate his life!

    your friend, Pat

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  42. I so sorry to hear of your loss. You are in my thoughts and prayers.

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  43. Jane, I am so saddened to read this. You and Bruce have been so brave through this battle against that horrid ALS! Please know that you and your family are in the thoughts and prayers of many, and will continue to be so. Rest in peace, Brave Bruce, and may light perpetual shine upon you!

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  44. I'm sorry to hear about Bruce...you and your family are in my prayers.

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  45. I am so sorry for your lose, I will be praying for your family. May God be with you through this journey and confort you with his presence.

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  46. Jane I am so sorry for the loss of your wonderful husband Bruce. I have followed your story since I started blogging and I have admired you both. I know that Bruce is leaving such a wonderful legacy! I am keeping you and your family in my prayers. God Bless you, Linda

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  47. So sorry for your loss, Jane. May you find comfort and strength during this difficult time. You and your family are in my thoughts and prayers.

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  48. Dearest Jane,

    I am so sorry for your loss, but what a remarkable man your husband was.
    Just know that you are not alone.
    You have blessed so many people in blog land.
    You are loved Jane.

    Laura
    White Spray Paint

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  49. Jane I made a small donation to Bruce's Battalion! I wish I could do more. I hope others will join in this fight in memory of your wonderful husband.

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  50. My deepest sympathies to you. Know that even though I don't "know" you, I am praying for your peace. Thank you for sharing some much of your journey with us. May your husband rest in peace.
    Karen G

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  51. Dear Jane, My heart goes out to You & your
    family. I am so sorry for your loss, you will
    continue to be in my Prayers~
    xox
    Cheryl

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  52. Oh Jane I am so sorry to hear about your husband Bruce's passing... He was a hero and will continue to be a hero to all that are afflicted with that terrible disease. My friends husband also died from ALS and anyone (and their families) going through it have amazing strength.
    God Bless you and your family Jane. May you find peace in his fight for others.
    Susan

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  53. Un abrazo grande y fuerza !me senciblizo con vos... desde Buenos Aires.........Carina

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  54. Oh Jane, I am so sorry. My thoughts and prayers are with you.

    Jocelyn @
    http://justalittlesouthernhospitality.blogspot.com/

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  55. Jane, I am so sorry. Just last night I checked out your blog wondering if there was any new word. Please know that I am lifting your family up in prayer. I would like to make a donation in your hero's honor. Angel's around you my friend.

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  56. I'm sorry to hear of your loss. Your family is in our prayers.

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  57. I'm sorry to hear about your loss. I lost my hero (my Dad) to that terrible disease 9 years ago. I know how much heartbreak and pure exhaustion (mentally and physically) that my mom went through. Your husband is in a better place with no pain and frustration now. I pray that you can find a way to get some peace and rest. God bless you and your family.

    Shasta

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  58. Jane, I'm so sorry. What a beautiful legacy your husband left - a life well lived. I'm sorry it couldn't have been longer. You will be in my prayers.

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  59. Jane, I am so sorry for your loss. You have written a beautiful memory of him for us. I will leave you with this verse I received....Though you cannot always see
    the bird singing,
    if you listen with your heart,
    you can always hear his song.

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  60. Those words you typed..."He made a difference and that made his life anything but ordinary." Powerful.
    Am sorry for your loss, and including you in my prayers.

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  61. I'm so sorry to hear of your loss Jane. He sounds like a great man and I'm sure he will be greatly missed. I'm thinking about you and your family during this time.

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  62. I am so sorry for your loss. My prayers are with you and your family. Your husband must have been a very brave and caring man.

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  63. What a courageous and special man he was. It looks like his smile could light up a room. I hope your wonderful memories comfort you and your family in this difficult time.

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  64. God Bless Bruce, God Bless you and God Bless your husband.

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  65. my heart just breaks for you, Jane. Sending love and many prayers for you and your family.

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  66. Dear Jane..
    My heart is sad for you and my eyes are crying with you. I'm so very sorry that your beloved husband has passed on. It's my prayer that he is in Heaven. May you find God's arms around you during this time along with family and friends to support you.
    Sending love,
    deb

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  67. Jane, so sorry to hear this news. You and your family are in my thoughts and prayers and I wish you peace and contentment knowing that you were his strength during his challenges. I wish you well.

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  68. I wish I knew what to say...I'm very sorry for your loss and pray for you and your family during this time of your loss.

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  69. Dear Jane,
    So very sorry for your loss. He sounds like an extraordinary man who had an extraordinary woman who shared the same courage, optimism and strength of character. I hope you find comfort in keeping the memories alive.

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  70. I am so sorry. My husband passed away almost exactly 3 yrs. ago so I do feel your pain. Peace to you & your son. Jan

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  71. I haven't been reading many blogs for some time and didn't know your husband was suffering with ALS. It is a devastating disease and my heart goes out to you and your family. Your husband sounds like he was a wonderful caring man and loving husband and I know you will miss him terribly. Keep your memories of the good times alive and he will always be with you.

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  72. jane...i am so sorry to hear about your husband. thoughts and prayers to you and your family.

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  73. I am so sorry for your loss and am sending you love, prayers and my deepest sympathy.

    Danielle

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  74. I can see the peace in this man's eyes ...
    over the years your kinds words of love and respect have echoed thru your posts ...

    peacefully, with his family at his side says it all ...
    you my friend are one brave woman ... carry his banner high ...
    your memories have been made and now can be remembered ...

    to be absent with the body is to be present with the Lord ...

    with much affection and respect
    savvycityfarmer

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  75. Jane, I am so sorry for the loss of your dear husband. What a beautiful tribute you have written, and what an example of courage and strength he was. May you be comforted by the loving memories of your life together and by the support and prayers of family and friends. ~Paulette

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  76. oh Mamie, i'm so sorry! i salute this man who lived life so courageously...you are blessed to have these wonderful memories! Esther

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  77. Jane, you have my deepest sympathies. Your husband was amazing, you should be so proud of his fight and his legacy.
    You and your family our in my prays.
    May you find comfort in the wonderful memories you made together!!
    xoxo

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  78. So sorry for your loss Jane. My thoughts and prayers go out to you and your family during this difficult time.

    Hugs,
    Robin

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  79. What a handsome man. Look at the love in his eyes.
    You are right, ALS is a horrible disease.

    Bliss

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  80. What an incredible man. So sorry for your loss.

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  81. There's such a sweetness in his eyes. I'm thinking of you and praying for your family.

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  82. Oh I am so, so sorry......
    When I started to read this post, a knew what was coming, but hoped not.
    My heart goes out to you and your family.

    With hugs and lots of prayers in the coming months,

    barb

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  83. Oh, Jane, I am so sorry for your huge loss. It is so difficult to put the essence of someone's life into mere words, but you have done a lovely job. Please know our hearts are aching for you.

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  84. So sorry to hear your very sad news..thinking of you.

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  85. I am so sorry you and your family have to experience this sad loss. Prayers...

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  86. Jane, I am so sorry for the loss of your husband and hero. He sure had a great spirit for life. I haven't checked in here for a while, because I thought you were still away. Something led me here tonight. I'm sure it was so I could pray for you and your family. God be with you and bless you.

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  87. This comment has been removed by the author.

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  88. I can feel the love you shared with each other. That will be the best legacy to hand down to your family.
    How wonderful that he gave so much to help others with ALS. That also says so much of his character.
    Bless you Jane!

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  89. Jane,I'm so sorry for your loss. You and your family are in my thoughts and prayers.

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  90. Oh Jane when I saw the photo my heart clutched and the tears began for you and your family. I am so sorry to hear of Bruce's passing. What precious words for the man you love. Please know our prayers continue on. We all love you so.

    Suzan

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  91. So sorry for your loss; what a wonderful legacy he leaves and how blessed he was to have you on the journey; we lost a friend to this cruel disease last year and keep praying that the cure will be found; Bruce's fund-raising will surely lead to steps in that direction.
    You and your family are in our prayers.

    Jan

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  92. Jane, I am so very, very sorry for your loss. There are no words.

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  93. Jane, I am so sorry for the loss of your beloved Bruce...my heart aches for you and your family. May he rest in peace.

    There's one more star up in the sky tonight.
    Even though it is far away,
    its brightness and warmth
    still reach us here
    to make the night a little less dark.

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  94. Dear Jane, I am so sorry for your loss of your Hero Husband. Please except our prayers for you and your family. Your Bruce was far from an ordinary man living an ordinary life. He took his fate of the awful disease and helped others when he could have only thought of himself--what a beautiful gift for him to share.

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  95. Jane,
    I'm so very sorry to hear this saddest of news. Sending healing thoughts your way this day and in the days to come. xo -amy

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  96. So deeply sorry for your loss Jane. You are very strong and brave yourself. Prayers for your whole family still continue...God Bless you all.

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  97. Oh Jane...I am so sorry to hear about Bruce's passing. He sounds like a really special man, and I know that you and all your family and friends will miss him terribly. I am sending loving thoughts, prayers, and shared tears your way, my friend...A BIG XOXO

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  98. Dear Jane, I am so sorry. He sounds like a truly wonderful man. Sending you hugs and praying for all your family. Gayle

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  99. I have no doubt that Bruce's hero is a wonderful woman named Jane. Please take care of yourself.

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  100. I'm so sorry for your loss, but what an amzing gift to have had such a man in your life.

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  101. Jane,
    My eyes are filled with tears as I read this post. I am so very sorry that you have lost this wonderful man and your best friend...please know that I will continue to pray for you and entire family.

    Blessings,
    Linda

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  102. I am so sorry for your loss and so grateful for the years you were able to have together. He will be with you forever in your heart and cheering you on in your future. Sending strength...

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  103. I am so sorry for your loss. I will keep you and your family in my prayers.

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  104. Dear Jane, I'm so sorry for your lost. I don't know what else I can say in this very sad moment. Just that you, your family, friends ... you can be really happy to know that you've shared your life with such a great man, as Bruce was.
    With best regards.
    Sandra

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  105. May you see God's light on the path ahead
    When the road you walk is dark.
    May you always hear,
    Even in your hour of sorrow,
    The gentle singing of the lark.
    When times are hard may hardness
    Never turn your heart to stone,
    May you always remember
    when the shadows fall—
    You do not walk alone. ~ Irish Blessing

    xoxo-cindy craine

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  106. I'm so very sorry that you lost your wonderful husband, Jane. You are in my thoughts and I send you big hugs,
    Julia

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  107. i'm very sorry for your loss i had just been thinking of you lately wondering how things were....nay God be with you and your loved ones

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  108. Very sorry to hear such sad news, but what an amazing man you had in your life, and yes a true Hero, you should all be so proud of him.
    May we all be so inspiring. ox

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  109. Just wanted to say that your husband was obviously a man struck down with a senseless illness way too early...I too lost my father at 60 and it is just way too young for a once healthy man to be taken away when so much of life was left to live...A courageous story and wonderful to think that he spent so much time when ill fighting it and making it better for others by way of the amazing funds raised for research...I hope your heart rests easy over time and his memory lives on...Suzanne, Australia.

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  110. Prayers for you and yours. Indeed your husband Bruce was a shining light in the fight against ALS. God Bless.

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  111. I am so sorry. I have popped in and out of your blog but had no idea. Praying for you and your family.

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  112. Blessings to you while facing your great loss.

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  113. Jane, my heart goes out to you and your family. May you find comfort in the loving memories you and your husband created together, and know that you are being surrounded with blessings for healing.
    Keeping you in my thoughts and prayers.
    Hugs, Debi

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  114. Dear Jane
    the sadness passes, the memories remain!
    I will pray for Bruce and for You

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  115. What a Awesome man Jane! I know he is wearing a crown of many jewels! Rhonda

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  116. Dear Jane,
    I am so sorry for you .We will pray for him.
    Olympia

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  117. Prayers and sympathies to you and yours

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  118. Jane my heart aches for you. I am so sorry. Please know that you and your family are in my thoughts, my heart and my prayers.

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  119. A hero indeed, your Bruce sounds like such a lovely man and so caring, what a wonderful smile he had.
    Thinking of you at this very sad time.

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  120. Thoughts and prayers are with you and yours at this difficult time....may peace come to you all, wrapped in warm memories.

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  121. My thoughts and prayers are with you and your family Jane.
    Hugs to you.

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  122. That picture of him, that face, tells us he was anything but ordinary. It's the kind of face that draws people in and I'm guessing everyone that met him liked him and became a friend. He has that kind of wonderful face. When I saw the picture in my blog roll, I didn't want to read it just yet. I knew what it was going to tell me but if I didn't read it yet, then maybe it wasn't true and you had more time with him. He was so young. I'm so sorry for you and your children that he was taken so young, but so happy for you all that you had that kind of husband and father. I too lost my father when he was relatively young. It was a life changing event for me but I focused on how fortunate I was to have the father I had and that he got to raise me to adulthood. I, too, just wish it had been for a little bit longer.
    Your post is beautiful and hopefully raises awareness of ALS just as he would want. Your family is in my thoughts and prayers.

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  123. So sorry for your loss. Prayers going out to you and your family. Comfort and peace.

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  124. Jane - my heart breaks for the loss of your husband Bruce. May the memories of all your happy times together live on forever. Be strong, your many friends are here to support you.

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  125. Jane, I just wanted to let you know that I have asked for prayers for you and your family today at my blog at Free Spirit Haven. Fearless Friday is a day we commit to pray for one another...((hugs))

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  126. Oh Jane, I am so very sorry for your loss. I dont have words, but you are in my thoughts and prayers. I wish for you comfort.

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  127. My deepest sympathies to the loss of your beloved Bruce.Rest assured you shall meet again someday in Heaven.
    Susan x

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  128. May God's love and grace surround you and your family during this difficult time. Your husband was a special man, and I'm sure it's comforting to know that he touched many lives in a positive and loving way.
    Blessings and love,
    Susie

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  129. I'm so very sorry to hear of your loss. Bruce sounds like anything but ordinary, indeed a true hero. My thoughts and prayers are with you and your family.
    Hugs,
    Rose

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  130. Hugs and prayers, Jane for you and your family.
    Lisa

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  131. I am so sorry to hear of your loss of your husband. You have wonderful memories. I hope they can help sustain you through the coming days.

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  132. I am so very sorry for your loss. I am keeping you in my prayers. Kit

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  133. I just happened to land here today, but want to say I am sorry for your loss. Sending strong thoughts your way -

    Dixie

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  134. So sorry for your loss. Wishing you wonderful memories.

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  135. My deepest sympathy for the loss of your dear husband. Words are so inadequate at such a time. May God strengthen and comfort you.

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  136. i am sending you my heartfelt and deepest sympathy for your loss. I ma without words other than that I will keep you close in thought and prayer. God Bless you all as you mourn your beloved husband's passing and begin to celebrate his life.

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  137. I am so very sorry to read this. You wrote a beautiful tribute to your husband. I am praying for all of you!

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  138. Jane...my deepest sympathy to you & your family I know that our Lord & Saviour will carry you through this time of sadness and he will give you the strength & courage to carry on, my thoughts & prayers are with you!!

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  139. Though we are strangers in this life, my heart hurts for you. The loss of a loved one--even when you can see it coming--is so hard. And losing a life partner---the one who "gets" you and supports you and shares the reality of daily life--cuts the deepest. Know that strangers are sending thoughts of love and healing for your spirit.

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  140. Dear Jane,

    I am so very, very sorry. Your husband was indeed a hero. May your hearts and souls be comforted in this time of loss.

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  141. I am so very sorry for your loss and hope that you and your family will find strength and comfort in the days, weeks, and months to come.

    Kat

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  142. Jane,
    I am so sorry for your loss. I am new to your blog....just finding you this week...but, timing is everything. I will pray for you...

    Mona

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  143. Jane, Praying for you at the sad time. Words can not say how sorry I am. I am sure he gave you many wonderful memories. Those are the ones to remember. Much love to you and your family at theis time.

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  144. No words are enough. No hugs are big enough.
    I am truly sorry for your family's loss. I have seen what this disease has done to others and am thankful your husband gave so much to help find a cure.

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  145. He sounds like a great man, anything but ordinary. Many prayers.

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  146. I am so Sorry for your Loss. My thoughts and prayers are with you at this difficult time.
    My heart goes out to you. I lost my husband 13 yrs ago. I know what you are going through.
    Take Care!

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  147. I am new to your blog just this week, so I didn't know about your husbands condition. I am so sorry to hear of your loss and know you must be so proud of all that he has done. May your heart heal knowing thru his condition he will have helped many! Bless you in these coming days!

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  148. There are no words to tell you how sorry I am about Bruce. I will continue to pray for you and your family to get through this rough time. You were no doubt the highlight of his life. Much love.

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  149. FAR from ordinary, I would say - what a touching tribute you put to paper, here...peace to you, Jane.

    Tanya

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  150. Dear, dear Jane, I am so sorry to hear of Bruce's passing. You both have stood so strong during these past two years and remained positive through everything. I can see in his eyes and his smile that he was a wonderful, kind and loving man. My prayers and thoughts are with you and your family during this difficult time. Hugs and blessings, Tammy

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  151. Jane,
    I'm sad beyond belief at your tragic loss, prayers to you and your family.

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  152. Jane,
    So sorry to hear of the loss of your wonderful husband. The beautiful and loving tribute you have written shows how special he was. You were all blessed to have the time you had together and he will live on in your hearts.
    Will be sending prayers your way.
    Rebecca

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  153. Your prince now sits at the feet of Jesus. May our Lord hold you closely in His loving arms. How courageous & brave both your beloved & you in this journey. Prayers lifting ...

    My friend Jocelyn shared your loss with me.

    TTFN ~
    Marydon

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  154. Jane, I am so sorry for your loss. You are in my thoughts. Sincerely, Susie

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  155. Hi Jane,so shocked to read this news this evening.I thought it was an update on your husbands fundraising efforts and could not believe the news,too young and so soon.My sympathies to you and your family at this time.
    Here in southern Ireland we have a very well known sports broadcaster suffering from the same disease,though its called Motor Neurone Disease here,he is in his late 50s I would think,diagnosed last March 2011.He featured on a special programme last week during which he spoke of his life as it is now.He is in a wheelchair at this stage and has had to resign from broadcasting as his speech was becoming slurred.He has been approved to take part in clinical trials of a new drug for MND and is fully participating in anything that might slow this illness or cure it.He is such a popular person here that 600,000 people watched the show that night.A lovely soap opera actress lost her life to it a few years ago here too.It is such a terrible thing to be diagnosed with and seems to be getting more prevalent.
    Your husband looked like a lovely gentle man,sympathies again to you.

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  156. Families are Forever...may you and your family be encircled with love and comfort from our Heavenly Father, family and friends. So sorry for your loss...it is so hard to lose a best friend.

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  157. Please know that thoughts and prayers are with you and your love ones...

    A verse of scripture that means so much to us is First Peter 5:7..."Casting all your care upon Him; for He careth for you."

    Blessings,
    Betty @ Country Charm

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  158. Jane,
    I just found your blog today (through Old Grey Mare). I was so touched by your post about your husband. You are in my thoughts. Take good care.
    Hope

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  159. I landed on your blog by way of Pinterest a few days ago and just happened to pop back in today. You don't know me, and I don't know you, but I want so say how very sorry I am for your loss. As the days, weeks, and months go by, may you and your family find strength.

    Your dh sounds like a wonderful man.

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  160. Oh Jane, I'm so sorry for your loss. I'm a rather new follower of you blog and am sorry to hear that Bruce has passed. He sounds like he was indeed an extraordinary person and a wonderful hero.

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  161. I am so sorry for your loss. It sounds like he was a remarkable man. I wish I had something more profound to say. Words are never enough.

    My thoughts and prayers go out to you and your family.

    Kathy

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  162. What a handsome man and his smile tells it's own story of courage, hope, joy and love. His story, along with your loss today, has put all of my personal problems in prospective...for that I thank you both. Godspeed to Bruce and prayers for your broken heart.

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  163. I am new to your blog as well but I have tears in my eyes from reading the wonderful tribute you wrote about your husband. I'm hopeful that sweet, sweet memories will fill all your hearts as you move forward during this difficult time.
    Janet

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  164. Jane, I've only found your blog a couple months ago but have been following your story and can't help but shed tears of sadness for your loss. You speak of how remarkable of a man he was and I think he found an equally remarkable partner who shows grace, courage and a zest for life. I'll be praying for your healing.
    Thinking of you,
    Jennifer

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  165. So glad you were together through all and at the end. I believe you'll find comfort in that fact. I agree with so many others, you are and will continue to be, a remarkable woman.

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  166. Sharing tears with you Jane.
    Not only were you blessed to have Bruce, he was blessed to have you. Sending prayers to Heaven.
    Dee Dee

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  167. I am so very sorry that your handsome husband is gone.

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  168. I'm so sorry to hear of your loss. I know what you are going through because I just lost my mom a few weeks ago after a short but courageous battle with a brain tumor. We just have to remember that we're the lucky ones to have had them in our lives. I have enjoyed your blog and your story, it helped me though the hard times to be able to escape into my blog follower world. My thoughts are with you.

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  169. Oh how selfless he was to do the work he did in the end, to pave the way for others who must have to encounter this awful disease. What a special man he was. Prayers for you and your family, I'm so sorry for his passing. Annette T

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  170. My deepest sympathies to you and your family.

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  171. I'm so sorry for your loss. Bruce sounds like he was a wonderful man and husband. May he rest in peace after his struggle.

    you will be in my prayers.

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  172. I am very sorry for your loss. Bruce sounds like a wonderful man, husband, and father. You are fortunate and blessed to have had such a man as your husband and father to your children.

    You are in my thoughts.
    Brenda

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  173. I am so sorry for your loss. Bruce sounds like a wonderful man and I know you have a lifetime of memories to cherish. You and your family are in my thoughts and prayers.

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  174. Oh Jane I am so sorry for your loss. Your husband was a most wonderful person with such a strong spirit that will live on in many aspects of your life. Prayers for strength and comfort are heading your way.

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  175. Oh Jane I am so sorry for your loss. He was such a great man it's hard to understand why the good ones leave us. I pray that his spirit and love will get you through these difficult days. Know that we are all here for you albeit virtually.
    hugs
    Carole

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  176. I am so sorry for your loss, but I KNOW you will see him again! He is free from the shackles of this earth. I pray that you will have peace and comfort. Hugs.

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  177. Jane,
    My heart is just broken for you and your family. I was touched by this disease over 20 years ago when my dad died with ALS. His doctor made the statement that he was one-in-a-million. I have remembered that all of these years and for probably a totally different reason that what the doctor meant. My dad was one-in-a-million for the way he handled the diagnosis and it certainly sounds like your wonderful husband was one too. You're in my prayers. Your friend in Memphis, Susan

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  178. I too am so sorry to read of this. my heart goes out to you and your family.. I am 55 and can relate to many of the issues, It is truly too young to leave this earth. My thoughts and prayers are with you.

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  179. Jane, I am so sorry for your loss!! It sounds like your husband was a wonderful man and you'll always be very proud of his life and how he handled his illness. It was so good of him also to give so much of his limited time to help others who will follow him with this illness. Take care of yourself!!! My heart goes out to you!
    Cecile

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  180. Dear Jane,
    I started photographing the sky this week and the phrase "blue skies" was coming to me today. Now I come here and read your post. I think about what your husband suffered and I know that now, he only sees blue skies instead of the dark and grey that he faced here on Earth. My prayer for you is that every time you look up and see the blue sky you will know in a very real way the peace that your husband feels now and that you will know the peace that only Christ can give.
    In Christ and Mary,
    Jill

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  181. Jane, my heart goes out to you and your family. Words seem so 'not enough'. May you draw strength from the love of friends and family and peace from He who is the author of peace. You will be in my prayers. ((hugs)) Marnie

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  182. I am so very sorry to hear this. May you find comfort and peace in your memories. SusanG

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  183. Jane, I am so, so sorry for your loss. I know it must be so difficult....how wonderful to have all the memories and even written word of your time with your love. Please know that I care...Ceekay

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  184. So sorry for your loss. May you feel God's arms around you as you face the coming days.

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  185. Jane,
    I am so sorry. My prayers are with you and your family. You are loved by so many and will never be alone as you have a very special angel looking down on you!
    xoxo
    Michelle

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  186. With deepest sympathy. Prayers to you and your family.

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  187. Dear Jane,
    The strength that you have shown is inspirational to us all. May you find some comfort in knowing that you are in my prayers and I am wishing you peace.
    Kimberly

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  188. i just recently discovered your blog and have enjoyed catching up with all your fabulous ideas...your attitude towards your husband's sickness has been quite a model of grace and serenity in the midst of the storm. i hope you will continue to share your gifts on the blog, and i wish you peace during this time.

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  189. You have been so kind to share his and your life here with us. I wish you peaceful,reflective days ahead.

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  190. What incredible love and admiration show through your post about your husband. You are (always) in my thoughts and now is my prayers.

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  191. So sorry to hear your news. He sounded like a truly remarkable man. Praying for comfort and strength for you. Take care. Debbie

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  192. so very sorry to hear of your loss thoughts from all your mates in australia lyn

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