Almost two years ago, shortly after my husband Bruce was diagnosed with ALS, he was the honoree at a local ALS golf tournament. Prior to the tournament, the ALS association asked us to write up a little bio about Bruce that could be displayed at the tournament.
Bruce and I sat down and wrote the bio and when we finished, he read it, and then commented that it sounded like he led a pretty ordinary life.
I couldn't disagree with him more.
Bruce led a life that was anything but ordinary and the true character of this man and just how extraordinary he was really shone after he was diagnosed with ALS.
From the day he was told he had a terminal disease Bruce faced the reality of his fate with courage, optimism and a will to fight. He never asked "Why me" and he put his energy into volunteering for clinical trials and raising money for ALS research. For two years running he was the top fundraiser for the local "Walk to Defeat ALS" fundraiser, raising over $60,000 for the cause. In late December he collaborated with the local ALS chapter to set up a Promise Fund Campaign so that the work to raise funds for ALS research could continue in his name. He was comforted knowing he could continue the fight to find a cure for this horrible disease after he was gone. He made a difference and that made his life anything but ordinary.
Bruce lost his battle with ALS today.
He died peacefully with his family by his side.
He lived for 54 years but will leave a legacy that will last forever.
I want to thank all of you for your support and prayers over the past few months.
I know they were heard.
You can read more about Bruce on his ALS Promise Fund page:
Bruce's Battalion, Fighting ALS
Jane
Bruce and I sat down and wrote the bio and when we finished, he read it, and then commented that it sounded like he led a pretty ordinary life.
I couldn't disagree with him more.
Bruce led a life that was anything but ordinary and the true character of this man and just how extraordinary he was really shone after he was diagnosed with ALS.
From the day he was told he had a terminal disease Bruce faced the reality of his fate with courage, optimism and a will to fight. He never asked "Why me" and he put his energy into volunteering for clinical trials and raising money for ALS research. For two years running he was the top fundraiser for the local "Walk to Defeat ALS" fundraiser, raising over $60,000 for the cause. In late December he collaborated with the local ALS chapter to set up a Promise Fund Campaign so that the work to raise funds for ALS research could continue in his name. He was comforted knowing he could continue the fight to find a cure for this horrible disease after he was gone. He made a difference and that made his life anything but ordinary.
Bruce lost his battle with ALS today.
He died peacefully with his family by his side.
He lived for 54 years but will leave a legacy that will last forever.
I know they were heard.
You can read more about Bruce on his ALS Promise Fund page:
Bruce's Battalion, Fighting ALS
Jane
